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UBC Cardiac Amyloidosis Clinic
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About Cardiac Amyloidosis
Nonspecific symptoms and manifestations overlap with more common disorders. Misdiagnosis is common. A recent subanalysis of an Amyloidosis Research Consortium online survey revealed that:
- Only 35% of ATTRwt and 17% of ATTRm were diagnosed in <12 months from start of symptoms
- 39% of ATTRwt and 57% of ATTRm received a misdiagnosis
- 17% of all respondents visited 5 different physicians before receiving the correct diagnosis
About The UBC Cardiac Amyloidosis Clinic
Research
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For Providers
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Support For Patients
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Cardiac Amyloidosis
- Majority of cardiac amyloidosis is caused by
- Light chains (AL): 65-80% of all diagnosed cases
- Transthyretin (ATTR): 18-35% of all diagnosed cases
- 2 distinct types of ATTR
- Hereditary or mutated (ATTRm)
- Wild-type (ATTRwt), also known as:
- Senile systemic amyloidosis
- Age-related amyloidosis
- Senile cardiac amyloidosis
BC Amyloidosis Patient Support Group
Contact Us
Email: info@amyloidosis.com
Phone: 604 875-5759
Fax: 604 875-4265
St Paul Address:
5 C/D-5th Floor, Providence Building
1081 Burrard Street
Vancouver BC
V6Z 1Y6
VGH Address:
Gordon and Leslie Diamond Health Care Centre
2775 Laurel St., 9th Floor
Vancouver BC
V5Z 1M9